Yet Another Club I Never Wanted to Join

To make a long story short, I have hypothyroidism. Only for real.

As you may recall,  I was put on levothyroxine while TTC because my TSH levels were high– within normal ranges, but a little too high for fertility purposes. I stayed on it during pregnancy for similar reasons. When you keep in mind the cornucopia of drugs I had to take to get pregnant, this seemed relatively minor.
Because I am overextended, I’ve not refilled my prescription for a month. (I know, I know…) I had my physical yesterday, and my blood work came back with real high TSH levels.
Of course, I googled. You’d think I would have learned that this is never a good idea.
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This is why you shouldn’t google

I’m going to be old, fat, depressed, and exhausted. Forever.
So called “support” groups tell me that I will never be the same, and I may end up living in my car because I’ll be so exhausted I can’t keep a job. I will die alone in a shanty. (Which, it should be noted, was a big fear of mine when I was sans baby. ALL PATHS LEAD TO DYING IN A SHANTY!)
Okay, okay… perhaps I am being a little dramatic. It seems like I can keep this under control with medication. Which I will have to take for the rest of my life.
In the scheme of things, I realize this isn’t the absolute worst thing that could happen… But then I think “I have a chronic disease. I have a DISEASE. What the actual f@ck?!”
Also, this could be why I was such a shit show a few weeks ago. You know… hormones kind make you crazy.

I’m not mad, I’m just disappointed

So I didn’t get the job.

Before you offer your condolences, I’m okay with it. Sorta. More along the lines of “You broke up with me before I could break up with you.” Ultimately, I knew I wouldn’t take the job, but no one likes to feel rejected. It is, in fact, only the 3rd time ever I have interviewed for a job and not received an offer. This feeling is weird, but I’ll get over it. (This is just me stating facts, haters.)

I found out I didn’t get the job the same week as my birthday. For the first time EVER, I was not looking forward to my birthday and that’s odd. I’m usually all into my birthday because I am awesome and like to take at least one day a year to celebrate said awesomeness.

Instead I spent the day in back-to-fricking-back meetings, doing double duty on pick-up and drop off because Mr. O had a haircut after work, then bitching him out because he didn’t actually wish me Happy Birthday until I reminded him it was my birthday… at 8:00 pm.

Then I cried. Then Chick fell and hit his head. And we both cried.

My birthday present to myself was a historic tour 5K. (#runningnerdalert) We were supposed to do it as a family– me, Mr. O, and Chick in the stroller. I was all set, but Mr. O fell ill so he stayed home with Chick. Instead of the family run I had been hoping for, I was going solo.

On my way to the meeting point (alone) I thought:

I’m just tired of being disappointed.

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#sadturtle

That’s where I’m at these days. I’m disappointed in so many things, I can’t even begin to list them (and we know how I love lists.) Nothing is out and out terrible any more –infertility and death of a loved one have a strange way of putting things in perspective. But I’m left with this general residue of severe let-down-ed-ness. And I don’t think I have been asking the Universe for too much. Honestly.

A few years ago at Christmas, my family requested a list of things I wanted as gifts. This has been a contentious issue for years– my family is notoriously cheap so you can’t recommend anything over $20 which is tricky because if I see something I want that is under 20 bucks, I’ll just buy it my damn self. Anyway… I spent a lot of time coming up with a few ideas that I wanted, needed, and magically came in around budget.

I had asked for a pair of black gloves and a Stevie Wonder CD. Instead I got a pair of socks from my brother, a book of poetry (by my dad’s favorite poet) from my parents, and a statement necklace from the J. Crew sale rack from my sister. Oh, and I also got the gift of white hot rage, because I was pissed. Why ask what I want when you’re just going to get me what you want anyway?! Then I felt horrible because I also felt ungrateful.

Because on top of feeling disappointed that my life right now is not what I would like it to be, I also feel immensely guilty for not being grateful. I have a good job, a roof over my head, a mostly decent spouse when he remembers not to be an idiot on my birthday… I look down at Chick and am filled with a wee bit of self loathing because he doesn’t make up for all the short-comings. It took me ages to have this baby, shouldn’t he just wipe away all my cares and woe? (Um, no… because it is uncool for a parent to make their child responsible for all the happiness in the world. Or at least that is what I tell myself for feeling like a bad person when Chick isn’t the only reason my day is awesome/shit.)

Should I pull an Oprah and list out my gratitude? That’s a little too Shiny Happy People for me… Besides, I’ve always hated this exercise because it seems to imply that if you have anything to be grateful for, you magically shouldn’t care about all the serious crappy things going on.

Good things in life don’t erase the bad ones. They just add to the texture.

Short, Sweet, Sad

I have cried every day since last Sunday.

I view what happened in Orlando as a deep, painful rupture of our humanness. 49 beautiful lives are gone. To say that this breaks my heart is a complete understatement.

As with all tragedies I’ve experienced over that last few years– the public and the private– I am shocked that the world has the audacity to keep spinning. In a few short days, we’ve turned from outrage at the shootings in Orlando to the regular drone of pointlessness that is American pop culture. The only related trending topic in my FB feed this morning was about JK Rowling sending flowers to victims. That’s nice of her and all… but.. What the actual f@ck, people?!

As much as this is devastating to me as a fellow human, I recognize that my friends and family who are gay experience this tragedy on a different level. I’ve done my best to avoid knee jerk reactions, to sit back and listen, to offer support when I can. I struggle to find the *right* words to say, worrying that I’ll contribute to hurt and fear instead.

Then I realized that perhaps my relative silence was part of the problem, because the rest of the world seems to be going silent or brushing this under the rug. I don’t want to be complicit.

Growing up, I went to a Quaker school. If you don’t know, Quaker service revolves around the act of silence. Imagine getting school kids to sit still for any period of time… Yeah, it was a challenge. And yet, it taught me that there is a value to periods of reflection, and there is a value to finding your voice and speaking from the silence.

My first instinct is Love. Because that has been my saving grace so many times before. It isn’t much, but it’s a place to start.

Mother’s Day, Served Cold and Rainy

I feel like I should tell you all about my first mother’s day as a mother. It was, however, fairly uneventful.

Last year, it was an absolutely train wreck with much crying in public. I remember it was a beautiful spring day with flowers in bloom and trees being… trees. I feel betrayed by the weather, because in my heart it didn’t feel like spring. I was missing my mom, conflicted about pregnancy, and unsure how I was going to do any of this without her.

This year, the weather again thumbed its nose at my internal emotions. Because this year, I was feeling okay. And this year, it was cold, rainy, and generally miserable.

There is a mother’s day tradition in my neighborhood– Lilac Sunday. The arboretum near by opens its gates to moms, dads, kids, and food trucks, and gives tours of the lilac collection which is usually in full bloom by this point. There is usually sunshine. There are usually people picnicking.

This year, it was a rainy mess, but we trudged on anyway. I mean, after spending a week in the rain with a 10 month old in Amsterdam, how much different could it be spending an afternoon in the rain with a 10 month old in my hometown?

Truthfully, not that different. Again Chick decided that strollers were for chumps and insisted on being carried. (You’d think I would learn…) This meant that one of us had to carry Chick, and the other one had to walk behind carrying an umbrella to make sure the Supreme Leader stayed dry. I felt like a Victorian manservant. (Note: That might be the title of my parenting memoir, were I to write one.)

After that, we came home. Chick and Mr. O napped. I went to the grocery store and made Chick’s dinners for the week. I won’t lie, there is a part of me that is extremely annoyed that those roles were not reversed. Then again, I got a few hours of quiet which was also a nice gift.

So there it was. Nothing too special, but then again I don’t think I wanted much more. What I struggle with is why. Is it because I don’t generally get amped about holidays? Is it because mother’s day represents one huge-festering sore, one part infertility and one part mom grief?

I do not cringe when I see pregnant women anymore. This is a fairly recent development- I would say that in the last few months I have had practically no twinges when friends or colleagues announce pregnancies. It feels like progress, something like acceptance of the emotional turmoil of last few years.

I now cringe when I see women with their mothers. I also cringe when I see women who would have been my mom’s age. Or who have her hair, which was once thick and black but gracefully turned salt-and-pepper gray.

This whole dead mom thing… that still aches. On mother’s day, and everyday.

Sadness, revisited

This morning, my coworker Robin came by my desk.  The usual “Hi/Good morning/How are you” commenced. He responded with “*Sigh* I’m tired.”

Robin is the father to a three year old. He could be tired for a number of reasons. I didn’t pry, and continued eating my Cheerios.

But he lingered and we made a little chit chat until Pea came over (His daughter has been in and out of the doctor’s office with, it turns out, mono. Babies get mono. Who knew?)

Pea made an off hand remark about how things were with Robin.

“We lost it.”

At my desk. At 9:20 in the morning. My coworker is openly talking about how his wife miscarried this week at 8 weeks. As you may recall, Robin and his wife suffered a miscarriage late in their last pregnancy. They are facing it again, and my heart breaks for them. There was a part of me that wanted to scream “Good god, man… GO HOME!” But we all have our ways to dealing with grief. I told him that if he ever wanted to grab a cup of tea, just ask.

(Aside: This lead to a very odd series of comments from Pea about how this is okay, good things are coming, etc. I wanted to push him, because this is NOT okay, good things aren’t always coming along, and sometimes things are just fucking miserable. Pea, of course, comes with his own set of losses so he knows this sting. I suppose this is just my way of pointing out that people who experience pregnancy loss can still be emotionally tone deaf.)

With my recent CD1, the idea has cropped up that Mr. O and I might try for another baby. You see, we have one on ice. Just one. I realize the chances that this one will thaw and become an actual human baby aren’t terribly high. But hope is there, somewhere in cryogenic deep freeze. The other day, I was looking at Chick and Mr. O playing together and thought “There is a 70%* likelihood that this is it for us. This is my family.” And you know what? I am okay with that.

Until this morning, I hadn’t also applied this statistic to the other side of the coin: There is high probability that my hypothetical pregnancy could fail. I’ve fortunately never experienced a miscarriage, but I don’t know that I could handle it– especially if I lost the only embryo we have left.

I don’t know what my point is exactly… Maybe just to say that these are wounds that never really heal.

*Based off the statistic that only 20-35% of IVF cycles result in a live birth. I rounded a little to a 70/30 split.  Sad sack stats, but thems the breaks for us infertiles.

No In-Betweens

Here’s my realization on juggling parenting, working, and life-ing: When it works, it is awesome. When it doesn’t, it is a complete shit show. There are no in betweens.

On a good day– when Chick wakes up well, eats well, gets to daycare on time, and my day is only 50% meetings– I feel like this is all totally doable. Harried, but doable.

If one tiny thing is off– say Chick pees and pukes all over the place, requiring two changes of clothes before 8:15 am– the rest of my day is off kilter. It’s like a domino effect of crap.

So when something big is off– say my daycare saying the our Early Intervention coordinator is no longer allowed to come for her weekly visits with Chick– it is like napalm has been dropped into my otherwise happy little existence.

I’m not going to go into details because this is an evolving thing– in fact, denying access to the EI coordinator could actually be illegal. I seriously doubt that this will end up in court, but you know… just in case.

I will say that on Tuesday I was given less than 24 hours notice, and found myself scrambling to make sure Chick could keep meeting with his EI coordinator. He has been making great progress, hitting all the major milestones, and I like to think that is in part because of the extra care and attention he is receiving. So imagine my surprise panic when the director told me that they wouldn’t be accommodating EI visits anymore.

The rest of the week has just been miserable. The emails back and forth, trying to understand what is going on with daycare, balancing this with work, all day trainings, presentations that I literally made up IN THE MEETING 5 minutes before I was about to go on, a job interview… On one hand, I give myself props for not completely dropping any one ball.

On the other hand, I’m tired. TIRED.

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This may have been me this week. Maybe.

Then I got an email about sippy cups which sent me over the edge. As if it weren’t enough that I’m barely keeping up at work and daycare is being remarkably inflexible and vague, I’m apparently supposed to be introducing sippy cups to Chick now? WTF? How did I miss the parenting memo on SIPPY CUPS?! I AM THE WORST PARENT EVER!

After some sobbing (which may or may not have been in the shower at 6:15 in the morning while I was also trying to wash my hair and brush my teeth,) I got my shit together and realized I am not the worst parent ever. I’m just like every other parent– trying their damnedest to keep up.

Staring Down the Storm

The other day, my brother posted something ominous on Facebook. One of those “something isn’t quite right” posts. So I reached out to him over email and asked what’s going on.

A lot of no good, that’s what. I won’t go into details, but basically he’s dealing with his own shitstorm.

And I know a thing or two about shitstorms, amiright? Like a good sibling, I offered up my version of a pep talk.

ME: So often in the past few years, I’ve had to remind myself that we don’t pick the challenges we face in life. But we do decide how we’ll get through them. So I guess the question is, how do you want to get through this? This isn’t a question that you need to answer for me. More like a question I ask myself all the time (it seems like) and helps me refocus.

BRO: I choose to think of what is happening to me right now like living through a hurricane. You hunker down and wait for sunny skies.

My first reaction was “Wrong answer.” Amended to “Wrong answer for me. I need to scream into the storm.”

The trouble is that when you treat your life as a hurricane you assume that the hard stuff is temporary. That what you’re going through will pass. What if it doesn’t? What if these proverbial sunny skies don’t actually materialize?

Is this how we divide up the world? Into hunker-downers and storm-screamers? I don’t mean to imply one is inherently better than the other. My brother, for example, wouldn’t find my tactics of facing my trauma head on remotely do-able. Honestly, it would likely be more harmful to him. Just like for me, the hunker down method would probably deaden me inside. (Dramatic, but also accurate.)

There is, of course, a value to conserving emotional energy. I know now that I sometimes need help, to admit I can’t do “ALL THE THINGS.” This has been one of the many painful lessons I’ve learned. But there is a part of me that feels my brother is being naive in thinking that it will get better.

Does this make me a jaded asshole?

The Things We Carry

So I’m working on another post. It’s a little bit lofty and gnarly, and I have to wrestle with it a little until I figure out what point I’m trying to make.

In the meantime, I’ve been reading little bits and pieces from the interwebs about grief and loss.

(I know, I just had a BABY. I should be over the moon with my darling little boy, and sharing posts about how he is the apple of my eye, cherry pie, cake and ice cream. He is all those things. But I get to talk about those things whenever I want because people want me to be happy about having a baby. They don’t want to hear about how I’m still struggling with losing my mother 10 months ago. They don’t want to hear about how sometimes I cry at the sight of my kid because I know my mother will never meet him. This is, for better or worse, what anonymous blogs are for. Sharing the unsharable.)

Anyway, I’ve been reading stuff about grief and loss. Not in a formal way. It’s been what I’ve gravitated towards. Other new moms want to read about how to get a few hours sleep. I want to read about how to be sad. That seems unfair, but whatever… that’s just what the Universe smacked me with, and I’ve made peace with that.

A friend of mine from high school had a stillbirth several years ago. She was devastated. She continues to be devastated, even though she went on to have another beautiful, healthy, living child. She is open about the fact that she still mourns, and this to me is the bravest thing. It’s so “uncool” to be publicly sad, and I love that she tells everyone to screw themselves by openly talking about her grief.

The other day she shared this blog post, which included this nugget of wisdom:

Some things in life cannot be fixed. They can only be carried.

HOLY shit, yes. I’m tired of people telling me that losing my mother will get “easier.” It hasn’t. Why should it? It doesn’t get easier to lose someone you love, to lose a life you loved, or a dream you had. There are some things that don’t go away. You have to learn to sit next to them and respect that a part of your heart will always hurt. Always.

The next bit of grief-related inspiration comes from a quote round up of Cheryl Strayed. (Ironically, my big gnarly post is also vaguely Cheryl Strayed related.)

If, as a culture, we don’t bear witness to grief, the burden of loss is placed entirely upon the bereaved, while the rest of us avert our eyes and wait for those in mourning to stop being sad, to let go, to move on, to cheer up. And if they don’t — if they have loved too deeply, if they do wake each morning thinking, I cannot continue to live — well, then we pathologize their pain; we call their suffering a disease.

We do not help them: we tell them that they need to get help.

Now that just about gets at the root of my problem with how we experience grief. For every time a person says “Time heals all,” I hear “Your grief makes me uncomfortable. Let’s talk about this in a few months when you aren’t weepy anymore.” Or “You’re weak if you still feel sad. It’s your fault you aren’t over it yet.”

Suck it.

In the olden days, there was an etiquette to how you mourned. You dressed in black for months or a year. Then you would slowly progress into somber colors until you got full access to the color wheel again.

As much as that sounds ridiculous, I kind of get it now. Most people don’t go around mourning my mom. I would venture to say most people who know me don’t even think about my mom that much, nor would I expect them to. She wasn’t their mother. But she was mine. I feel her loss acutely every day.

I wouldn’t mind wearing black so that people might think “Riiiiight… Her mom died. Maybe I should be less of an asshole to her today.” 

I wouldn’t mind wearing my sadness every once in awhile.

The Long Road

(Okay, this shit is a little heavy. That’s just where I am today, okay?)

This morning, I was listening to the news and there was a story about a family coping with the current flooding in Texas. Their home had been flooded up to two feet, and they were now  sorting through what could be saved and what could not.

The couple, originally from Canada, had two different views (or at least how the story framed it up.) Though both were upset, the mother was on the verge of tears. She recounted how she ran around the house gathering up her children’s favorite toys, books, and other memories before they could get destroyed by the water. She was audibly emotional when she told the reporter that her grandparents’ chest was likely ruined. This wasn’t what she wanted for her family or her kids.

The father, on the other hand, said something along the lines of “I think this is good for my children to experience struggle. It’s good for them to see what recovery looks like.”

And I’ve been thinking about this all morning. What does “recovery” look like?

I’ve often thought about infertility as I would any other disease. Getting pregnant isn’t a cure, but more a temporary treatment. I will always be infertile, just as someone who has had cancer will have always had cancer, even if they are in remission. Or an alcoholic will always be an alcoholic, even if they haven’t actively relapsed.

[Before I continue, I want to be 100% clear. I don’t mean to be flippant about cancer or alcoholism. These are serious diseases, and I have nothing but compassion for people who have experienced them.]

Pregnancy doesn’t erase infertility like it never happened. I think of it almost like a skip in the record, one that jumps to the next track without warning. Treatment allowed me to temporarily become “fertile” so I can to have and maintain a pregnancy. After Chick is born, it isn’t like I’ll magically be able to get pregnant without a whole lotta scientific intervention. This, in a sense, isn’t curable as much as it is by-pass-able.

Which brings me back to my original question… If I’ll always be infertile, what does my recovery look like? What does it mean to put myself back together once the metaphorical waters have subsided?

The thing about recovery is that it also implies wreckage, doesn’t it? Going back to the couple in Texas for a minute… their home was destroyed, and recovery meant going through what could be salvaged and what had to be thrown out. In order to recover, you have to recognize that something happened, that you can’t just go back to how things were, that there are pieces of your life you can’t save. Even the things you loved most, like your grandparents chest or your child’s beloved toy. You have to let go of them, or else they could carry toxic mold spores. (Perhaps I’m taking this flood analogy too far…)

There is a thread here that connects to my recent fatwa on Spring. I’m not “over” infertility. I can’t just go back to my life before the repeated disappointments, frustration, and heartache. As with my mother’s death, I realize there is no getting past this. Like natural disasters, these things happened to me, tore me apart, and I have no choice but to look at my life differently now.

It sounds cliched, but recovery is a long process. I’m now admitting to myself that it is taking a lot longer than I would like it to. Can’t I just skip over the hard part where I don’t cry everyday about how much I miss my mom, or wake up at 3:00 am convinced something is going to go wrong with my pregnancy? I want a goddamn easy button for this.

It isn’t that I don’t respect struggle. In a sense, human beings were born to struggle. It’s how we learn everything from walking to feeding ourselves to changing our tires. Who we are is forged, and that process can be hard and ugly and painful.

Maybe that’s what recovery looks like. It’s hard. It’s painful. And it can’t be easy.

Now is the Spring of My Discontent

How does a pregnant woman who has just lost her mother celebrate Mother’s Day?

Denial. Denial, denial, denial.

It’s worth noting that we were never a “Mother’s Day” family. Breakfast in bed, flowers from the back yard, and a homemade card. That would be it. Of course, this was how most holidays were celebrated– everything was pretty low key. It’s almost like we were Jehovah’s Witnesses…

I have been dreading Mother’s Day. Not in my usual “Damn Commercialization!” sort of way. In a new, exciting “I hate all people who have mothers” sort of way. This sounds crazy, I know. But in the same way that you secretly hate all pregnant women (or used to) I now secretly hate all people who have living, breathing mothers. Lucky me, there is a whole holiday dedicated to celebrating this relationship which I sorely miss! De-light-ful!

So I decided to pretend like none of this was happening.

In a weird and unfortunate scheduling snafu, Mr. O planned a vacation with his cousins for this week, meaning I would be by myself on Mother’s Day. He freaked, offered to change the tickets, but honestly, I didn’t care. I miss my mother every single day, and I didn’t see how this one would be any different. I’ll just cry a little more than usual, and that is no reason to incur change fees.

Still, it did seem like nice excuse to do whatever I wanted, so I mapped out what my day would look like. It started with a long walk in the arboretum near my house.

I wear black on the outside, because black is how I feel on the inside.

I wear black on the outside, because black is how I feel on the inside.

The arboretum has been my sanctuary in many ways. When I’ve lost jobs, suffered personal defeats, or just needed to clear my head, it has been the first place I go.  I’ve been running there almost every day for the past two years, and I’ve seen it change in all seasons. It’s kind of like an old, trusted friend. I can lose myself in this space, and it always seems to reflect where I’m at.

The winter where I live was brutal this year. I actually welcomed it because it gave me a perfect excuse for not wanting to leave the house. After my mom died, I would go for runs in the arboretum. It was freezing cold, the trees were leaf-less, and everything seemed gray and barren. Striped down. And exactly how I felt. It was a place where it was okay for me to cry and run and lose my breath– and keep moving because if I didn’t I would literally not be able to feel my face. Even as March approached, it looked like winter here wouldn’t end, and this didn’t strike me as a problem. Rather, it felt fitting.

Why do trees have to be such assholes?

Why do trees have to be such assholes?

But here’s the thing about seasons… they are temporary. I may have wanted winter to last forever, but Spring is always just around the corner. On this particular Sunday, Spring wasn’t just around the corner– it was in full effect, and RELENTLESS. Birds frolicked from branch to branch, and bush to bush. Flowers were everywhere. Trees which up until a few weeks ago reflected my emptiness were now full of adorable little green leaves bursting from their ends.

I have never wanted to start a forest fire more.

Instead, I cried on a park bench. I have become, by the way, an expert at public crying. The key is to not give a shit what anyone thinks about you. Should someone give you funny looks, fling the mucous which you are producing in abundance in their general direction.

After I collected myself, I headed back home for a spot of breakfast then to my prenatal yoga class. It seemed like a way I could “celebrate” Mother’s Day without actually doing any celebrating. Hell, I would have gone anyway– it just so happens that my class is on Sundays.

This week, Randi decided to do something a little different. Instead of our usual meditation on intentions for the practice, blah, blah, blah, we meditated on motherhood. This shouldn’t have surprised me– I was in a prenatal yoga class on MOTHER’S DAY after all– and yet my first thought was “Motherfucker, do we have to do this right now?!”

Part of the meditation was to think about the emotional connection that mothers have with their babies while carrying them. Just like they get nutrition from our bodies to grow, they also feed on our emotions and our state of mind.

“Well, my child is screwed because I’ve been an emotional train wreck since January.”

What am I teaching this kid? Am I teaching them to be sad all the time? That seems like a depressing legacy (literally and figuratively.) Just as I was about to burst into tears at the idea that I’m harming Chick by crying all the damn time, I caught myself. Rather than teaching Chick that life is painful and terrible and morose, perhaps I’m showing them how to love deeply and completely. While this can be painful and terrible and morose, it can also be such a gift.

The truth is that I’m not ready for Spring. I’m still hurt and sad and angry, and I’m not ready to give that up. Yet there is something comforting in knowing that eventually seasons change.